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The Namibian National Register for Rheumatic Heart Disease
The Namibian national registry for RHD was started in January 2010 as part of a global initiative.
Patients are recruited for the registry at Windhoek Central Hospital and, since 2013, on outreach visits to Oshakati and Rundu Intermediate Hospitals. There are now 561 patients in the national RHD register.
The Namibia National Advisory Committee for Prevention and Control of Rheumatic Fever and Rheumatic Heart Disease was formed in 2015 based on the valuable information acquired through the Namibian National Registry.
The Advisory Committee is designing the details of a national programme to: raise awareness through public and professional education, establish a well-tested surveillance system, advocate for the improvement of availability of health services for patients and promoting the adherence to effective measures for the prevention of rheumatic fever.
The Register plays a vital role in providing knowledge and evidence on RHD for research and policy purposes.
Zühlke et al. 2015, 'Characteristics, complications and gaps in evidence-based interventions in rheumatic heart disease: the Global Rheumatic Heart Disease Registry (the REMEDY study)', European Heart Journal, vol. 36, no. 18, pp. 1115-1122.
Registry’s and research; Remedy’s for public policy - The story of Rheumatic Heart Disease in Namibia, Pan African Society of Cardiology (PASCAR), September 2015
Zühlke et al. 2016, 'Clinical Outcomes in 3343 Children and Adults with Rheumatic Heart Disease from 14 Low and Middle Income Countries', Circulation
Cardiovascular Disease in Africa 2018 (in press)
Auala et al. 2017, 'The severe presentation and poor outcomes of Rheumatic Heart Disease in Namibia: Lessons from the REMEDY study'
Senior REMEDY and RHD GEN research leaders, UCT and Namibia
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